Former AFLW star Moana Hope gives moving update on her sister Vinny: ‘That has never happened’

Former AFLW star Moana Hope has given a heartwarming update on her sister Vinny after a special visit to an art gallery in Melbourne.

Hope’s sister has Moebius syndrome, a rare neurological disorder affecting facial muscles and eye movement.

People with the syndrome experience facial paralysis and the inability to move their eyes from side to side.

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Hope noted in her most recent Instagram post that because of Vinny’s condition, people often spoke directly to her instead of her sister – a situation that did not happen at the NGV International art gallery in Melbourne’s CBD.

“How amazing is this. Vinny got asked by Tourism @australia if she would like to enjoy a day at the @ngvmelbourne and while doing so if she could give them feedback on the accessibility for her needs and how she found the customer service,” Hope explained, sharing several pictures from their visit to the gallery along with Hope’s daughter Svea.

“The fact that they are looking into things like this gives me hope, and even more so. Including Vinny means everything to her and me,” she wrote.

The post was captioned: #inclusivity.

In a separate video, Hope went into further detail about the customer service Vinny experienced at the gallery’s shop.

“So, the lady who served us, when Vinny got the candle off the shelf and walked towards the register … the lady spoke directly to Vinny, and did not – and I was waiting for it to happen, because it happens everywhere, it’s never not happened – she didn’t ask me if this was all I wanted or didn’t ask me to pay for it,” Hope explained.

Left: Moana Hope and her sister Vinny. Right: Vinny at the NGV Melbourne shop. Credit: Instagram/Moana Hope

“She kept direct contact with Vinny, and spoke to Vinny, and asked Vinny to pay for it, and just respected Vinny as a person, rather than thinking I needed to step in and speak for Vinny or take over for Vinny.

“I thought that was quite powerful, because that has NEVER happened, so kudos to you.”

“Love this,” one fan wrote.

“Huge shout out to the NGV and the amazing love you have for your beautiful sister.”

Left: Moana Hope, her sister Vinny, and her daughter Svea. Credit: Instagram/Moana Hope

“It’s great that they talked with Vinny about what she wanted to purchase and not ignore her and talked directly to you … inclusivity is so important and also helps Vinny build confidence in talking up for herself and her needs,” said another.

“She must be chuffed that they approached Vinny for her input … and it was fun to boot.”

Said one: “Yay to the lady who spoke directly to Vinny.”

“You’re such an incredible role model to not only your sister but your gorgeous children, wow,” one follower wrote.

“Love this in so many ways!” wrote another.

Moana Hope (left), and with Vinny and Svea at the NGV Melbourne. Credit: Instagram/Moana Hope

On a slightly separate note, Hope said she had done Vinny’s hair for the occasion and felt it wasn’t her finest work.

“Vinny asked me to do her hair and it’s very clear that I will not be changing career paths to be a hairstylist anytime soon,” she joked.

But her followers thought Vinny’s hair looked fantastic.

“Love your hair Vinny!” one person said.

“Vinny’s hair looks amazing,” agreed another.

“I love Vinny’s hair,” added a third.

“Rocking it girlfriend.”

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